My Misdiagnosed Miscarriage Story

Have you had a misdiagosed miscarriage? Please share your stories here.

My Misdiagnosed Miscarriage Story

Postby MandyJ » Wed Nov 11, 2009 11:58 am

Hello Everyone--- I am new here... I would like to share my story because I was DEVASTATED to be told I was having a miscarriage and I want to encourage anyone every diagnosed with miscarriage to GET A SECOND OPINION.

Ok... I little background about me.
My husband and I had been trying to get pregnant for 2 years... including 9 months of fertility treatment. I had to take provera to get my period or I didn't get one at all - i have gone 9 months without a period... Well, a few months back... after we had quit fertility treatment after 8 months, I started bleeding and I didn't stop. My period lasted over 35 days- until I took medication to make it stop. Because of this. I went in and had an ultrasound to check to see what would have caused this bleeding. I had cysts on my ovaries, which wasn't a surprise because I have PCOS. But my uterus was DOUBLE the size it should be. So for two months, I took aygestin, which causes the uterus to shed its lining to hopefully get it back to normal size. If this didn't work i would have to have biopsies for cancer. The doctor believed I hadn't gotten pregnant because of the size of my uterus! It was in NO shape to house a baby. So, that following cycle we started on a lower dose of clomid. I went in for an ultrasound to follow up, the uterus was back to a perfect size and there was one follicle- the doctor told me I would ovulate within the next day or so. So, Hubby and I did the baby dance for the next 5 or 6 days.

A couple weeks later, I was having bouts of nausea and CAR SICKNESS! I even said to my husband, "I think I'm Pregnant... I never EVER have car sickness" I began peeing more- which I had always heard wasn't until later but I am one person who can sleep 14 hours without having to get up to use the restroom- I was getting up religiously every night to pee all of a sudden. Well, the day my period was due- i tested with a dollar store test, and it was negative- NOW thinking back on it I don't think i let it sit the full 3 minutes, I think it was more like 30 - 45 seconds, but I had been so used to being let down that i just tosses the test!

So, a couple days later... I still was really tired and still without a period. So, I took a test. Just as i had finished the test, i set it on the bathroom sink, and my phone rang. It was my dad, so i answered it, and we got into a long chit chat and I forgot to check the test. So, I walked in the bathroom after I got off the phone, and there is a faint positive. I thought to myself, "thats not what i think it is... that's an evaporation line... is that what i think it is?... maybe... nooo". I had be SOOOO USED to being let down. So, I send a picture to my friend who says, "that's a positive". So, I sat right here just in utter SHOCK. Finally, I got up to go to the store and buy more tests. We live in the country, so it took me 20 minutes down the hilliest road I could have taken to get to the store. I remember being so nauseous by the time I got there! I went in and bought 5 tests, two different brands, drove home, and in my excited haste, almost drove passed my house. I dropped the keys while trying to unlock the door. When I finally got it opened, I rushed in through my jacket off on the floor, and right back to the bathroom- by this point I had to pee anyway. I did two tests- both BRIGHT positives! So an utterly JOYOUS but SURREAL day!

So, I figured I was about 6 weeks 4 days based on ovulation- That would have made me 4 weeks and 3 days pregnant when I found out.

Well, the next day, I woke up and didnt have any symptoms like I had before I got the test- I hadn't even gotten up to use the restroom like i had been doing consistently for the last couple weeks. So, I got scared. I looked online and it said it was normal for symptoms to wax and wane. My symptoms still hadnt come back during week five. So, I went in to my doctors and spoke with a nurse who suggested an ultrasound just to check but said she had no one in the office who was comfortable looking at a pregnancy that early and my doctor wouldn't be in, so we would have to settle for a beta test. My numbers should have doubled, which they did. BUT, I take progesterone supplements and it has been said that the progesterone cause cause a mother who has miscarried to hold a dead fetus in her body because there is no drop of progesterone to signal the body to expel the fetus.

I decided that if my normal doctor couldn't help me, I would try somewhere else. I went to a doctor where they were said to be trained in early pregnancy ultrasound. I went in when I should have been about 6 weeks and 4 days. They did an ultrasound and told me there was a sac that stopped growing and 4 weeks and 4 days and that there was no visible baby. The woman kept insisting maybe I had my dates wrong- but they weren't because I was seeing my fertility specialist who knew when i ovulated. I knew that it could be a few days off because of implantation but not 2 weeks. That would have meant I would have just conceived at the same time I got my positive test- not possible. The office made me sign miscarriage precaution paperwork, etc.. I was heartbroken... I just cried and cried and cried. My husband went into my work and told them I wouldnt be in the following day because I was miscarrying and was not in the right state of mind. I called my normal doctor telling them the news, unfortunately my normal doctor and nurse were out. My parents came in out of town to make me dinner... they kept be busy for the evening and then my hubby kept me up nice and late carving pumpkins and watching movies, ATTEMPTING to keep my mind busy. I thought, "maybe i should stop the progesterone". and decided against it until I got a second opinion.

Luckily, the next morning, my doctor's nurse called and said she was scheduling an emergency ultrasound. The woman who told me they had no one who could do it was INCORRECT. I was basically figuring I'd go in and get confirmation and schedule a d & c. I'm sitting in the lobby across from a 16 year old girl who is about to have a c section that night and a couple who is there for their OB appointment. I sat their heartbroken, jealous, and mad at the world. My name was called and my husband and i went back into the ultrasound room. I wasn't excited for this ultrasound- I just lied there expecting the miscarriage confirmation and to relive the heartache all over again... The ultrasound tech put the probe on and not 10-15 seconds later she said, "well, the person who did your ultrasound yesterday didn't know what they were talking about because there is a 6 week old fetus in here with a heartbeat of 114" and I about jumped off the table and i remember saying, "really!?". My husband and I were thrilled!! thrilled isnt even the word. We called all our family - my mom was even more of a mess then when she heard i was "miscarrying". Everyone had been praying for it.

God forbid, I would have been someone who was sooo shocked that I went home and drank a bottle of vodka! Thank God, I kept myself together. So, PLEASE before you make any rash decisions, GET A SECOND OPINION PLEASE!!

here is our first ultrasound at 5 weeks and 6 days. I am due June 25th, 2010 :-)

P.S. my pregnancy symptoms came back with a vengeance!! we're convinced it's a boy- a little trickster already, just like his daddy!
Mandy J
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Postby Kay » Thu Nov 12, 2009 1:47 pm

So glad you found your baby and I'm so glad you didn't have to wait almost a month like so many of us to find that baby. Doctors need more patience. You really were much too early to even worry about a blighted ovum.

To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this

This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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