High HCG, Empty Uterus, SURGERY

High HCG, Empty Uterus, SURGERY

Postby VomRuizHaus » Fri Oct 30, 2009 12:20 pm

I am new here and posted this in another area. I think this is where it should have been posted. Sorry! I have copied and re-posted here
Hi Ladies,
My name is Stacy and I am 35. This is my first time posting here. I was referred by a member of another board. A quick history, I have 4 children and have had 5 miscarriages.

I wanted to share this frightening experience I had with you, and see if anyone else may have gone through the same thing... My last m/c was in Nov. of last year. I went to the ER the night before last for mild cramping and brown spotting and they gave me an HCG test, pelvic exam and a transvaginal u/s. (LMP was around 9/21) The Dr. came back with the results and informed me that my HCG level was over 13,000. He said that was high BUT that in the u/s they saw no embryo and told me they suspected a tubal pregnancy and told me I needed surgery (laparoscopy) right away. I was heartbroken and sobbing my eyes out. And scared to death!

The OB came to the hospital and told me all of the risks involved and that she recommends (I agreed) to having the one tube with the embryo in it removed, as it could cause problems for me later from the scar tissue. I am already 35 and was planning on (and praying for!) this one more baby. And she said I still would have one tube and have a good chance of getting pregnant again later.

She did the surgery and came in to tell me afterwards, that she found NOTHING. She did not remove the fallopian tube. Now I have to go back on Tuesday for another HCG test and u/s. They did not do any other tests before I left the hospital. Not even a second u/s just to be sure...Now, I have a cyst on one of my ovaries that I have had for years, which has never really bothered me, and she thought that maybe the embryo attached itself to that but she could not see it (the embryo) during the surgery. She also said there is still a possiblity that I may be able to have this baby. She told me to expect some vaginal bleeding, which I have had a very little and only after going to the bathroom, when I wipe. No clots though.

So here I am not knowing if I am miscarrying, or if next week I will need another surgery in case the baby was just too small to see in my tube during the surgery, or on my ovary...Or if this may still be a viable pregnancy, which I am praying to God it is!!! <3 I love this baby already and just don't know what to think.

I know ectopic pregnancies are nothing to wait around with, but I also feel as if they may have done the surgery a bit prematurely. I don't know. I am just depressed, scared, confused and feel like I was hit by a bus after that surgery late last night. The laparascopy was doesn't hurt but everywhere is SO painful (They said it's from the gas)

Has anyone else been through this or anything similar to it? Thanks to anyone who can share their experiences

Stacy
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Postby Kay » Sat Oct 31, 2009 3:38 am

Oh my goodness Stacy, I am so sorry to hear you have been through this.

You really may want to consider a second opinion and you may want to get it quickly. Call another office and explain what you have been through.

Please, keep us updated.
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare: http://www.squidoo.com/misdiagnosedblightedovum
Told I was miscarrying at 12 weeks: http://www.squidoo.com/firstmisdiagnosedmiscarriage

Blogging on Misdiagnosed Miscarriages: http://misdiagnosedmiscarriagemusings.blogspot.com/

If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: http://www.squidoo.com/IVFMisdiagnosedMiscarriage

and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest:
http://www.squidoo.com/blighted-ovum-nine-weeks

This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Postby VomRuizHaus » Sat Oct 31, 2009 12:20 pm

Thank you Kay. It has been a nightmare. I am still not "feeling" pregnant and having a fairly small amount of bleeding, which the doctor said was normal from the examinations and the surgery. I am feeling a little bit better. The operation site doesn't really hurt too much but the rest of my body strangely enough feels like it has been hit by a bus :-(

Since it is a Saturday, I probably won't find a doctor's office that is open. If I can find one on Monday who will take me in, I will definitely go Monday. I will let you know what they say.

If the pregnancy ends up not being viable, or I have already m/c'd I don't know if I will TTC again. I am afraid and upset. This site has given me so much hope though.

:H

Stacy
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Postby Kay » Sat Oct 31, 2009 12:56 pm

Stacy, your feelings are completely normal. This is a scary time and who wants to risk going through something like this again? If this does end up being a miscarriage, keep in mind, the emotional pain does fade and many women do try again with great success.

I just hope you get the best of news on Monday. I'll be looking for your update.
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare: http://www.squidoo.com/misdiagnosedblightedovum
Told I was miscarrying at 12 weeks: http://www.squidoo.com/firstmisdiagnosedmiscarriage

Blogging on Misdiagnosed Miscarriages: http://misdiagnosedmiscarriagemusings.blogspot.com/

If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: http://www.squidoo.com/IVFMisdiagnosedMiscarriage

and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest:
http://www.squidoo.com/blighted-ovum-nine-weeks

This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Postby VomRuizHaus » Tue Nov 03, 2009 12:21 pm

Thank you Kim. I was unable to get in to any of the doctors that I called on Monday. Because I was a "new" patient and since I was in no pain, not bleeding (only bled red for two days after the surgery on Wenesday night, then brown spotting Saturday and Sunday, nothing yesterday.) And since I had no fever, they would not take me in.... They didn't consider it an emergency.

So I go in today at 1:30. I am a nervous wreck! I am also VERY upset with the doctor's nurse because I started feeling very nauseated yesterday and didn't know if it was normal after the surgery. When I called they transferred me to her voicemail, I left a message and she never called me back!!! And I called well before the office closed! So they will be hearing that from me!

Well if everything goes well, I will write later today. If not it may be a few days. I'm praying for good news

Thanks for listening
Stacy
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Postby VomRuizHaus » Tue Nov 03, 2009 11:24 pm

OK so I went for my appointment today and had another u/s done. They found a sac, measuring 5 weeks, possibly only 4...but no yolk or anything. So I believe, as I thought to being with that the surgery was unnecessary! BUT the doctor said that she is NOT yet ruling out an ectopic, which makes absolutely NO sense to me. She said there is a rare condition that you can have a sac in your uterus and still another in your tube or somewhere else in the abdomen. I don't believe in my heart that this is the case with me.
I just cannot believe any of this. She said that because this was a "wanted" pregnancy she isn't going to do any futher treatments or tests besides the HCG, which I had drawn today but will not have the results back for THREE days! And at that time I will have another HCG done. So this is the waiting game...again... I do have a small hope still that this may be a viable pregnancy, but I just don't want to get my hopes up too high.
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Postby VomRuizHaus » Fri Nov 06, 2009 3:59 pm

I HATE that doctor's office. They refused to give me the results of my HCG test over the phone like the doctor said she would. And to top it off she will be out of the office until the 13th, the day of my next appointment that I will NOT be going to....I will be going there Monday though to file a medical release so I can take it to a new doctor!
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Postby VomRuizHaus » Fri Nov 06, 2009 7:39 pm

Well the doctor ended up calling me today. My HCG level only went up to 14,000 in one week, from 13,000. So waiting to miscarry.
And did you know that a miscarriage is not a medical reason for time off of work? The doctor said she cannot give me time off. That is is "only" like a heavy period. I have miscarried enough times to know, mentally it is NOT like a heavy period :-(
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Postby Kay » Sat Nov 07, 2009 10:56 pm

I am so sorry to read your updates. Of course you should take time off from work. I think you need a new doctor and I am glad to read you are finding one.

(((Hugs))) and prayers.
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare: http://www.squidoo.com/misdiagnosedblightedovum
Told I was miscarrying at 12 weeks: http://www.squidoo.com/firstmisdiagnosedmiscarriage

Blogging on Misdiagnosed Miscarriages: http://misdiagnosedmiscarriagemusings.blogspot.com/

If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: http://www.squidoo.com/IVFMisdiagnosedMiscarriage

and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest:
http://www.squidoo.com/blighted-ovum-nine-weeks

This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Postby VomRuizHaus » Sat Nov 07, 2009 11:00 pm

(((Hugs Kay))) Your support has really helped me. I am a dog groomer and I have my clientel. I can absolutely not be at work, goooming a clients dpg when I start to miscarry. I will be devastated.

I have to go back to work on Monday and have an appointment with the new ob/gyn on Tuesday, (my regular day off) Hopefully the new doctor will be a bit more compassionate. :*(

Thanks again Kay, It was nice to have someone to listen to me.

Stacy
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