I was misdiagnosed

Have you had a misdiagosed miscarriage? Please share your stories here.

I was misdiagnosed

Postby mommyof3waitingon4 » Tue Feb 19, 2008 1:03 pm

will try to make this short . I found out I was pregnant on Jan. 21st with a HPT. We were TTC. I Started Spotting on 1/27/08. I have had 3 great pregnancies in the past and no problems with anything. It Freaked me out. I called the Dr's office to have a nurse call me back. My first appt wasnt scheduled until Feb.5th so She didnt want to give me any info because I wasnt established yet..
Anyway she said I could go to the hospital if I started bleeding heavily or cramping. So I waited all day and then I couldnt take it anymore, I had to find out if something was wrong. They did a VU and found nothing. My HcG Levels were about 890. The Dr that I was going to see happened to be at the Hospital , so she came and checked on me . She told me based on the Ultrasound I was either not as far along as I thought or I was already miscarrying... OK
She scheduled an appt on 2/1/08 to do more blood work and another VU in her office and to talk about a D&C, I took a friend with me just incase (support) The VU showed nothing again and my HcG Levels were 1600 which meant they doubled. The Dr said they werent rising fast enough and she would suggest a D&C again. She was so sorrrrryyyy that this was happening and wanting to make sure I was OK. I turned down the D&C and said I would let my body due what it was gonna due naturally.
My origional appt was on 2/05 and she wanted to see me again then to see if I changed my mind on the D&C. (Boy was she pushing the subject)
I was very upset that she was pushing this ! IN THE MEANTIME
I found out one of my girl scout moms is a OB Nurse with another clinic and I asked her a couple of questions about my situation. And do you know that she asked me if I happened to be going to this certain clinic and the exact Dr. ! I was shocked. She said they get atleast 5 or so patients from this clinic a year saying they were diagnosed with a miscarriage! Just about two months ago their clinic delivered a healthy baby boy to a woman that my Dr had on the D&C Table until the Lady chickened out and refused the surgery. That told me to change DR's right away and get a 2nd opinion! The next day 2/05 I scheduled a appt with another clinic. Which wouldnt be until 2/13. I wanted to have my HCG Tested again so I would have an idea which way I was going
So again on the 5th I went back TO THE CRAZY DR>and she took me in her office before they did the blood work and tried to get me to do the D&C,She even told me she was so sure my HCG levels have dropped!Then she explained that she would be going on vacation on Sat. the 9th and would be gone for a week and would really like to do the D&C before she left. Her partners could take care of it for me if I had too, but since I am her patient and she knows me , it would make her feel so much better if she could do it herself!! $$$$$ uhuu! She wanted to do another VU that day ,but I didnt want one done by her, I just went to get my blood drawn. I scheduled a Vu the next day knowing I would cancel.
I refused the the D&C, until someone can give me 100% that I had a miscarriage I am not letting them do nothing to me......
Blood work was done and levels were now over 3000. Hmmmm. I canceled the VU the next morning and do you know that [b]DR[/b] called me 10 times with sympathy that we really needed a VU done because my levels should not be going up and it could be dangerous.... WOW
(sorry this is so long)
So My new Dr appt was on 2/13/08 and they did a blood draw and the normal financial stuff and that was it. I did explain all I have went thru with this other office. They didnt seem to concerned! I called on 2/14 to check my HCG and come to find out they didnt run a quant test! Here I go again!
I stressed to them on the phone how important it was to me to get this test done, just to give me an idea. So they ordered the test to be done on the blood that they took the day before.
So on 2/16 the Dr called me at work and left a message telling me to give her a call about the HCG levels. I recvd the message a 215pm and I called back and they close at 200 on Fridays... GREAT! I left a message for the oncall Dr to call me back and maybe she could get the results for me. So about 430 she calls back with the levels 950! She said it pretty much means a miscarriage is taking place and If I wasnt bleeding or cramping yet I will be soon. OH MY GOSH!!!!!!!!!!!!!!!!!!
She said I would need to see my Dr first thing Monday and get another quant drawn and probably a VU>
So I called monday and they got me in . My Dr did 2 different VU and found NOTHING! No baby, no heartbeat, no sac...But she made the comment that she is not diagnosing anything until she sends me to the Breast Center to get a more HIGH TECH ultra sound done. So I went at 330 that day. SHE FOUND A HEALTHY 7WK 4Day BABY!!!!! YEAH
and when I was checking out my Dr office called and said my HCG levels were at 22000. They said the Lab must have messed up.... WHAT A NIGHTMARE THIS HAS BEEN.
Sorry this was so long, but I just wanted everyone to know GET A 2ND OPINION!!!!!! Maybe even a 3RD.... GO with what your body is telling you not what the Dr thinks might be going on....
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Postby michanders4 » Tue Feb 19, 2008 1:44 pm

CONGRATULATIONS!! I have an appt for a second u/s on Thursday and I am hoping for the same outcome as you. You will be in my thoughts and prayers!
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Postby jamie » Tue Feb 19, 2008 1:48 pm

your post just left a chill all the way down my spine! i am so happy for you! i myself had a m/c this past november and i sometimes feel like i jumped into the d&c too quickly, i just have "this feeling", but i'll never really know. the good news is that i'm 9 weeks pregnant now and so far so good. good luck to you!
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Postby Kay » Tue Feb 19, 2008 2:42 pm

Wow, what a time of this you've had. That first doctor needs to be reported to somebody. How awful and how terrible that she has a reputation for pushing women into D&Cs.

Keep us updated and congratulations to you!
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Postby mommyof3waitingon4 » Tue Feb 19, 2008 4:16 pm

Thanks for your support, this truly has been an experience. I have only lived in this state a year and I hate going to new doctors. And of course I pick the one that likes to do D&C's.
B)
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Postby Shara » Wed Feb 20, 2008 3:13 pm

Wow, what a great story! :)8 I'm so glad that you waited and got a different opinion. I had a blighted ovum over the summer and went right away after my 2nd ultrasound, like right after to the hospital for a d & c and I think I will always have that what if feeling after finding this website to see if I should have waited longer. I have a new great dr. now that totally supports waiting and being 100% sure before we do anything. I have my 3rd and final u.s. next Wed. and I sure hope to get a result like yours.
Congratulations again!
Shara
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Postby dawne » Wed Feb 20, 2008 3:50 pm

Marty....
That is soooooo great!!! Thanks for sharing your story! It has given many of us HOPE!!! Sorry you had to go through all of that heartache - it really doesn't seem fair, the things and the waiting we all have to go through!
Wishing you all the best and keep us posted on your progress! :)O
Dawn (38) Hubby (35)
DS Ethan (09/11/05)
3 angel babies m/c (10/31/06) ectopic (12/11/06) m/c (2/29/08)
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Re: I was misdiagnosed

Postby JESUSISTHEDOCTOR » Fri Feb 22, 2008 1:08 am

[quote="martyembree"]will try to make this short . I found out I was pregnant on Jan. 21st with a HPT. We were TTC. I Started Spotting on 1/27/08. I have had 3 great pregnancies in the past and no problems with anything. It Freaked me out. I called the Dr's office to have a nurse call me back. My first appt wasnt scheduled until Feb.5th so She didnt want to give me any info because I wasnt established yet..
Anyway she said I could go to the hospital if I started bleeding heavily or cramping. So I waited all day and then I couldnt take it anymore, I had to find out if something was wrong. They did a VU and found nothing. My HcG Levels were about 890. The Dr that I was going to see happened to be at the Hospital , so she came and checked on me . She told me based on the Ultrasound I was either not as far along as I thought or I was already miscarrying... OK
She scheduled an appt on 2/1/08 to do more blood work and another VU in her office and to talk about a D&C, I took a friend with me just incase (support) The VU showed nothing again and my HcG Levels were 1600 which meant they doubled. The Dr said they werent rising fast enough and she would suggest a D&C again. She was so sorrrrryyyy that this was happening and wanting to make sure I was OK. I turned down the D&C and said I would let my body due what it was gonna due naturally.
My origional appt was on 2/05 and she wanted to see me again then to see if I changed my mind on the D&C. (Boy was she pushing the subject)
I was very upset that she was pushing this ! IN THE MEANTIME
I found out one of my girl scout moms is a OB Nurse with another clinic and I asked her a couple of questions about my situation. And do you know that she asked me if I happened to be going to this certain clinic and the exact Dr. ! I was shocked. She said they get atleast 5 or so patients from this clinic a year saying they were diagnosed with a miscarriage! Just about two months ago their clinic delivered a healthy baby boy to a woman that my Dr had on the D&C Table until the Lady chickened out and refused the surgery. That told me to change DR's right away and get a 2nd opinion! The next day 2/05 I scheduled a appt with another clinic. Which wouldnt be until 2/13. I wanted to have my HCG Tested again so I would have an idea which way I was going
So again on the 5th I went back TO THE CRAZY DR>and she took me in her office before they did the blood work and tried to get me to do the D&C,She even told me she was so sure my HCG levels have dropped!Then she explained that she would be going on vacation on Sat. the 9th and would be gone for a week and would really like to do the D&C before she left. Her partners could take care of it for me if I had too, but since I am her patient and she knows me , it would make her feel so much better if she could do it herself!! $$$$$ uhuu! She wanted to do another VU that day ,but I didnt want one done by her, I just went to get my blood drawn. I scheduled a Vu the next day knowing I would cancel.
I refused the the D&C, until someone can give me 100% that I had a miscarriage I am not letting them do nothing to me......
Blood work was done and levels were now over 3000. Hmmmm. I canceled the VU the next morning and do you know that [b]DR[/b] called me 10 times with sympathy that we really needed a VU done because my levels should not be going up and it could be dangerous.... WOW
(sorry this is so long)
So My new Dr appt was on 2/13/08 and they did a blood draw and the normal financial stuff and that was it. I did explain all I have went thru with this other office. They didnt seem to concerned! I called on 2/14 to check my HCG and come to find out they didnt run a quant test! Here I go again!
I stressed to them on the phone how important it was to me to get this test done, just to give me an idea. So they ordered the test to be done on the blood that they took the day before.
So on 2/16 the Dr called me at work and left a message telling me to give her a call about the HCG levels. I recvd the message a 215pm and I called back and they close at 200 on Fridays... GREAT! I left a message for the oncall Dr to call me back and maybe she could get the results for me. So about 430 she calls back with the levels 950! She said it pretty much means a miscarriage is taking place and If I wasnt bleeding or cramping yet I will be soon. OH MY GOSH!!!!!!!!!!!!!!!!!!
She said I would need to see my Dr first thing Monday and get another quant drawn and probably a VU>
So I called monday and they got me in . My Dr did 2 different VU and found NOTHING! No baby, no heartbeat, no sac...But she made the comment that she is not diagnosing anything until she sends me to the Breast Center to get a more HIGH TECH ultra sound done. So I went at 330 that day. SHE FOUND A HEALTHY 7WK 4Day BABY!!!!! YEAH
and when I was checking out my Dr office called and said my HCG levels were at 22000. They said the Lab must have messed up.... WHAT A NIGHTMARE THIS HAS BEEN.
Sorry this was so long, but I just wanted everyone to know GET A 2ND OPINION!!!!!! Maybe even a 3RD.... GO with what your body is telling you not what the Dr thinks might be going on....[/quote]


Glory Hallelujah!!!!! These "doctors" are praticing medicine. There is only one doctor and HIS name is JESUS. HE is the one that knows all! I am not getting a D&C until they explain more to me and make sure that I am as far as they say I am. I don't think that I am 9weeks as they say, going from my LMP. I know that I did not conceive in December. It was early January, I know this. My cycles are irregular. I went 4 months without a cycle then finally had one in December. Then tested in January and low and behold, I was pregnant. They keep telling me that I am 9weeks. These doctors know NOTHING.
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Postby bwilli » Fri Feb 22, 2008 10:05 am

I'm sorry you had to go through so much, but I can't say I'm surprised. I am going today for a fifth ultrasound and I think I may demand one of those hi-tech ultrasound machines. Do you know what it was called?

Also, you sound like you could join my 'vent' about incompetent doctors!

Take care and thanks for sharing your story!

Beth
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Postby mommyof3waitingon4 » Fri Feb 22, 2008 12:51 pm

I dont know what exactly the ultrasound is called but they had to send me to the Breast clinic which is considered a specialty facility and their equiptment is just more high tech because of it being a cancer facility. You might just check and see if they have a specialist that they send patients to.
Good luck and It is God who will decide if this is a viable pregnancy and if you shall have this child not a Dr who is D&C happy and cannot get the dates right.

I knew I didnt concieve until Jan and the first doctor insisted I was pregnant in December. We didnt even start trying until Jan. But most Dr's think you know nothing and they know it all.
Mommy to
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Kaylee 4/10/96
Kelsee 7/1/00
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UPDATE

Postby mommyof3waitingon4 » Fri Feb 22, 2008 12:54 pm

My doctor called me on Thursday afternoon and told me all looks great by the u/s and she found out that the reason for the spotting was a pin size tear in my Corion , which is part of the outer layer of the placenta. She said that the u/s Tech found it and it was barely leaking some blood. Nothing to worry about and it should correct itself... :)8
She will see me again on Monday to check my HCG Levels and if that looks good she is taking me out of high risk and putting me at a normal pregnancy and only scheduling me once a month. :H :)O< B)


BY THE WAY NOT ONLY IS MY UTERUS TILTED IT IS OVER TO THE LEFT AND THAT IS WHY NO OTHER U/S TECH COULD FIND ANYTHING CAUSE THEY WERENT LOOKING AT MY UTERUS. :()
Last edited by mommyof3waitingon4 on Fri Feb 22, 2008 3:06 pm, edited 1 time in total.
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Postby pucketts03 » Fri Feb 22, 2008 3:00 pm

Hello, I am new at this so bare with me. I have been reading everyone's story's on here and it sounds like there is more then just me that have problems with drs. My husband and I have been trying for 4 1/2 yrs now, we have had one miscarriage, a tube removed and have done clomid for about 6 months. In January we finally got pregnant again. So I call my fertility dr which is a specialist to let her know. She wanted to do blood work right away. So we did that on Jan 25, levels were low so she wanted to repeat, did it again on the 27th. Levels went up but didn't double. So she wanted to do another HCG level and see me for an VU. Did the blood work again, went up but didn't double, at the VU (2/5) she didn't see anything so she automatically thought ectopic. Wanted to see me again on the 8th. Went again for a VU and she saw nothing again. So of course she discussed our options. She wanted to look one more time so that was on the 11th. Saw a spot but didn't think it was anything, so she sent me to the hospital to have another VU to see what they saw. It was a fetal pole measuring about 5 weeks. So I was clear from an ectopic which was good because I can't afford to lose my other tube. So then of course she wanted me to come back for another VU to make sure that fetal pole was growing so went back on the 15th and it did grow to about a 6 1/2 week fetal pole. She is still thinking that since my HCG levels are not doubling and the fetal pole isn't growing like it should and she can't find the heartbeat yet that I am going to miscarry. So of course she wanted me to do a D/C. I refuse because I did not try all this time for them to take it away from me so fast. This week on 2/19, I woke up and had some brown spotting, so I called because I was freaking out and of course the only thing she could say was you are having a miscarriage. I just kind of blew it off because I wasn't having all the other signs of one. The brown spotting went away but came back again the next day. This time it seemed like it was a little bit more. When I got home from work I noticed that there was some blood in my underwear, so I put on a pad and just sat around the house waiting for it to happen. Nothing, the next morning there was brown again. I am still not having any cramps or a lot of blood to be concerned. I am to go back to her for another VU tomorrow and I am just praying that she finds a heartbeat so I can at least get the thought out of my head that I am going to miscarry any time now. :H

Has anyone had a similar situation if so please help. I don't know what to do or think. My husband is ready to punch the dr in the face because she keep telling us that we are going to miscarry. :()
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Postby mommyof3waitingon4 » Fri Feb 22, 2008 3:09 pm

I had a little red blood when I first starting spotting and then I have had brown for about 3 weeks, only when I wipe usually. But it took 3 different people to figure out about the tear in my Cornia and not a miscarriage. I was not cramping just spotting.
:H Good luck. Let us know when you find out more.
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Postby riotgirl » Fri Feb 22, 2008 8:24 pm

Congrats to you. I am so happy. Your story gives hope to others.
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Postby vnsslfm » Fri Feb 22, 2008 10:57 pm

[quote="pucketts03"]Hello, I am new at this so bare with me. I have been reading everyone's story's on here and it sounds like there is more then just me that have problems with drs. My husband and I have been trying for 4 1/2 yrs now, we have had one miscarriage, a tube removed and have done clomid for about 6 months. In January we finally got pregnant again. So I call my fertility dr which is a specialist to let her know. She wanted to do blood work right away. So we did that on Jan 25, levels were low so she wanted to repeat, did it again on the 27th. Levels went up but didn't double. So she wanted to do another HCG level and see me for an VU. Did the blood work again, went up but didn't double, at the VU (2/5) she didn't see anything so she automatically thought ectopic. Wanted to see me again on the 8th. Went again for a VU and she saw nothing again. So of course she discussed our options. She wanted to look one more time so that was on the 11th. Saw a spot but didn't think it was anything, so she sent me to the hospital to have another VU to see what they saw. It was a fetal pole measuring about 5 weeks. So I was clear from an ectopic which was good because I can't afford to lose my other tube. So then of course she wanted me to come back for another VU to make sure that fetal pole was growing so went back on the 15th and it did grow to about a 6 1/2 week fetal pole. She is still thinking that since my HCG levels are not doubling and the fetal pole isn't growing like it should and she can't find the heartbeat yet that I am going to miscarry. So of course she wanted me to do a D/C. I refuse because I did not try all this time for them to take it away from me so fast. This week on 2/19, I woke up and had some brown spotting, so I called because I was freaking out and of course the only thing she could say was you are having a miscarriage. I just kind of blew it off because I wasn't having all the other signs of one. The brown spotting went away but came back again the next day. This time it seemed like it was a little bit more. When I got home from work I noticed that there was some blood in my underwear, so I put on a pad and just sat around the house waiting for it to happen. Nothing, the next morning there was brown again. I am still not having any cramps or a lot of blood to be concerned. I am to go back to her for another VU tomorrow and I am just praying that she finds a heartbeat so I can at least get the thought out of my head that I am going to miscarry any time now. :H

Has anyone had a similar situation if so please help. I don't know what to do or think. My husband is ready to punch the dr in the face because she keep telling us that we are going to miscarry. :()[/quote]

I had the same thing went to the hospital and was told there was nothing in the uterus....empty as he put it. Followed up with my dr 2 days later on Monday and she does and U/s and there she was 6wks 1 day with a beautiful little E>. I tell you what some of these dr's should just keep there mouths shut they really do not know any more than you or I. I fell really blessed that my dr has been so wonderful giving me progesterone for bleeding just in case and checking me and rechecking me. I am almost 29 weeks and we hope to welcome our little miracle into the world in early May!! Anything is possible ladies never loose hope! With god anything is possible! If you don't like your doctor find a new one!
Mom to DD born 11/22/05
Miracle Baby Girl due 5/13/08!!!

Hope is contagious!
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Postby Ashley1985 » Fri Feb 22, 2008 11:01 pm

It's amazing to me, how many women are being misdiagnosed! I can't believe it, these doctors are practically TRYING to kill our babies? sorry for the harsh words, but seriously! Congrats on your story, I'm having kind of the same situation! :)8 E>
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Misdiagnosed Blighted Ovum

Postby wonderwendy » Sat Feb 23, 2008 12:31 pm

I never thought I'd be back on this site...I researched "blighted ovum" after I was diagnosed with one on wednesday. I had a sonogram last saturday that showed an empty gestational sac, but the tech said not to worry, and that I was probably just not as far along as I had thought. I was scheduled to repeat the sonogram in 1 week(today). I did some bloodwork on monday, and then the doctor called-he said it didn't look good. He diagnosed a blighted ovum and said he was very sorry. He told me I could schedule a D&C or just let nature take its course. I was told to repeat bloodwork on wednesday and keep my saturday sonogram, just to confirm. I was devastated; this is my third pregnancy-a very wanted baby. Anyhoo, I drank a few glasses of wine with my mom and cried wednesday night, stopped taking my prenatal vitamin, and sucked a few beers last night, and went in for my sonogram this morning. As I laid in the chair, I told the tech that it was blighted and she flipped on the microphone and smiled as I listened to the baby's HEARTBEAT!!!

I have a perfectly health 6w3d fetus, and I can't believe it. My doctor had expected me to be bleeding by now; he is flabbergasted!!


EVERYONE: DON'T RUSH INTO A D&C!! DOCTORS MAKE MISTAKES, TOO!
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Postby mommyof3waitingon4 » Mon Feb 25, 2008 10:35 am

:)8 Congrats Wonderwendy , that is wonderful. I know exactly how you feel. Good luck with the rest of your pregnancy. Are you going to keep your same Dr. or are you going to change.
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Kaylee 4/10/96
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Postby pucketts03 » Tue Feb 26, 2008 11:54 am

Well I went to the dr on Saturday and what looked like a fetal pole is now a black circle. So dr said that there is no way it is still a baby because there is still no heartbeat. Said that she will give me two weeks to miscarry on my own and if I don't she will do another v/u and to make sure whatever is in there is still there. Then do a d/c to get rid of it. She said that sometimes your body can attack the pregnancy because it thinks it is a foregin object and she thinks that it what is happening since this is my second miscarriage. After the d/c she wants to run test to find out why my body is doing this and if and when I get pregnant again we will know what to do to keep my body from attacking it. So I guess I will just keep my fingers crossed and see what happens.
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Postby wonderwendy » Tue Feb 26, 2008 2:23 pm

[quote="mommyof3waitingon4"]:)8 Congrats Wonderwendy , that is wonderful. I know exactly how you feel. Good luck with the rest of your pregnancy. Are you going to keep your same Dr. or are you going to change.[/quote]
Mommy-
I'm going to stay with him; I really don't feel like it's his fault!! Every time I call him with another question he chuckles and says "I don't really know! I'm the guy who said you'd be miscarrying by now, remember?"
High HcG's and no fetal pole or cardiac activity (I thought) meant B/O...but this isn't an exact science.
Also, he was fine with my decision to pass on the D&C, he just wanted me to know that it was an option. He DID say that now after this has happened, he'll be more likely to advise his patients to "wait it out," if they can. He's using my case as an example!!!
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