As I add stories to this post, I'd like to add some helpful information.
1. Many of the stories will overlap. Often times the women who have <b>empty sacs with hCG levels over 10,000</b> will also be told the gestational sac is big enough that a baby should be seen. They will also find their babies between, on average, 8 to 10 weeks although, as you can see, a few are even further along.
2. Often women with a tilted uterus will fall into a number of these groups. They'll have the higher hCGs that will not be doubling (really, despite what your doctor may say, they are NOT supposed to double in 48 hours at this time but instead 96 hours or even more). They will also almost always be told they are one to two weeks behind even when there is no possibility of conception to have taken place then. Don't worry, in the second trimester when you have your abdominal ultrasound, dates will be more accurate.
3. For women who fall in the <b>"No Heartbeat Seen" </b>category during the first trimester, we have been told you should wait at least a week and have a follow-up ultrasound to verify. Unless you are showing signs of infection or something is seriously wrong, ask to wait that week. As you can see, those little heartbeats can on occasion show up.
4. Women who have ultrasounds done by doctors are also frequently misdiagnosed much too early. Women should always turn down ultrasounds done by their doctors and only have them done by fully-trained ultrasound technicians. Research is showing that ultrasounds may not be as safe for our babies as we'd like to believe and you really do want a technician who knows what they are doing.
5. If you finally believe there is no hope and schedule that D&C, please, ask for one final ultrasound right before the D&C. We've had too many babies turn up at that ultrasound now.
6. Keep in mind, a number of women who were given no hope found their babies at nine weeks or beyond. Unless you are showing signs of infection or have a serious condition, eight weeks may just be too soon to have a D&C for a blighted ovum.
I am still adding helpful stories to this post. We just have so many misdiagnosed women's stories here now that this is quite an undertaking in itself. As I add more stories, I'll add more helpful information to this post.
I hope women find this post helpful. I am also hoping that once we get these stories 'categorized', we'll have an easier time figuring out how to get the ultrasound literature changed so it reflects more accurate information. Also, if we can get doctors to realize that they are misdiagnosing too many women, maybe they can examine how they might handle these pregnancies differently.
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare: http://www.squidoo.com/misdiagnosedblightedovum
Told I was miscarrying at 12 weeks: http://www.squidoo.com/firstmisdiagnosedmiscarriage
Blogging on Misdiagnosed Miscarriages: http://misdiagnosedmiscarriagemusings.blogspot.com/
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: http://www.squidoo.com/IVFMisdiagnosedMiscarriage
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest:
This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.