Very slowly rising hcg - HEARTBEAT FOUND! BABY BORN!!!

Have you had a misdiagosed miscarriage? Please share your stories here.

Very slowly rising hcg - HEARTBEAT FOUND! BABY BORN!!!

Postby Jennie79 » Thu Apr 24, 2014 12:46 pm

Hi,

I'm new here. I'm looking for hope in my situation and I have read your stories - thank you for sharing them! I wanted to share mine as well. (And I'm sorry about my English, it's my not mother language).

I was in IVF cycle and started to have little brown discharge spotting 10 days after embryo transfer. For my surprise, 12 days after embryo transfer my hcg was 93 (pregnancy week 4+0). I thought it was a bit low, but doctors told me it was ok (minimum level 50 for that day). Anyway I asked for another check, since I still had little brown spotting. I also have had early pregnancy failure on November 2013 after FET. Spotting took altogether around one week (very little amounts per day and only brown discharge) and then stopped on pregnancy week 4+6. I had no cramping or other pains. I had very early pregnancy symptoms, on a week 4+ I started having sickness, sore breasts etc. I have had one successful pregnancy (altogether out of five pregnancies, so this may be my fourth miscarriage..) With that successful pregnancy my morning sickness started only week 6+ with much higher hcg-level, so I was surprised about having so strong pregnancy symptoms this time two weeks earlier. However, pregnancy symptoms started to "come and go", but they have always came back. I still have now, 5+3, very sore breast etc.

Then what happened? My second hcg-test on 5+1 was only 249! So it had not even tripled in eight days! My doctor told me to get ready for miscarriage, this can't be normal pregnancy. But same time she told me, that I have very slight chance having slowly rising hcg for some reason and still have successful pregnancy. Or a "vanishing twin syndrome" though I had only one embryo transfer, she told me that sometimes one embryo splits into two on a womb and then another one can miscarry, which causes low hog-levels at this point.

I know I sound desperate to find ways to explain my lousy hcg-levels… and must admit that I am. I wouldn't wanna lost this pregnancy, not again. But I'm thinking the positive sides: the spotting has stopped and not came back in many days (could it be the "vanishing twin"?), I don't have had bleeding or cramping or pains, I still have my pregnancy symptoms (though maybe little less strong than last week..)

In my last early pregnancy failure my doctor told me to continue progesterone medication after BFP and I think that postponed miscarriage. I had cramps and suddenly I just felt "not pregnant" and did home pregnancy test, which was negative. Then I had another blood test and hcg was only 6. Then doctor told me to stop progesterone and the bleeding started right away. This time my doctor told me to stop progesterone right after positive test, so that can't postpone the miscarriage this time. I've been without progesterone now more than a week and instead of having heavy bleedings like last time, even the little spotting has stopped during that time.

So here's my story so far (or very little part of it, I have had many miscarriages and failed IVF's during past 10 years, but luckily one perfect, 3-years-old "prove" that I can actually have a child). Can you please help me to understand what's going on? Have anyone else experience the same (little spotting that stopped, good hcg-level that rises very slow, pregnancy symptoms that continue, no miscarriage symptoms)?
Last edited by Jennie79 on Wed May 07, 2014 11:20 am, edited 2 times in total.
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Re: very slowly rising hcg - waiting to miscarry?

Postby Kay » Thu Apr 24, 2014 1:52 pm

Hi Jennie. I am sorry you are going through this scare. You are right. That is a really slow rise in numbers but I think they need to check again just to be sure. Please, keep us updated.
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Re: very slowly rising hcg - waiting to miscarry?

Postby Jennie79 » Fri Apr 25, 2014 12:36 am

Thank you for your message Kay. I know there's a very little hope. And having said that last night that I didn't have any cramps, I woke up very early this morning having mild cramps in my lower stomach :( I think now I'm basically waiting the bleeding to start.. :'( Very confusing is that I still have morning sickness and very sore breasts and last days these haven't even "come and go", the pregnancy symptoms have been relevant all the time. Even my womb seems to be "swollen". This situation is driving me crazy.

I really got some reassurance from these stories, specially couple of them where these women have had as low and as slowly rising hcg's as I have and still they did success in their pregnancies. I did some research on internet and found out on medical sites that the possibility to this is somewhat 15%. It's not much, but it does happen to some people. I hope so much this to be one of those miracle pregnancies, but scarily it seems that it's not.. :'(

I'm having my third hcg-test on Tuesday. So there's nothing I can do right now than waiting for it / waiting for bleeding to start.. :/
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Re: very slowly rising hcg - waiting to miscarry?

Postby Kay » Fri Apr 25, 2014 11:25 am

I know the waiting is the worst! I've had women tell me who have gone on to miscarry that there was almost a relief because the waiting was so miserable. Let's wait and see what that hCG check shows. Praying for you!!!
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Re: very slowly rising hcg - waiting to miscarry?

Postby Jennie79 » Fri Apr 25, 2014 4:30 pm

Thank you <3 All prayers & wishes are needed.

Yes the waiting is so stressful. I think I'd rather taken clear negative result from the IVF-cycle than this - painful waiting and still my chances to successful pregnancy are almost zero.. It feels so frustrating - if there was real hope, but they just told me get ready for miscarriage.. My head is saying that I should (prepare for mc), but my heart is saying that I can't. Not just yet. After that mild cramping I have had none symptoms of miscarriage and pregnancy symptoms are still strong. It feels almost impossible to understand that this pregnancy (as real as it is to me right now, physically too) doesn't have a chance :(

I'll inform what happens next week.
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Re: very slowly rising hcg - waiting to miscarry?

Postby Jennie79 » Tue Apr 29, 2014 9:50 am

Update:
I had my third hcg-results today and surprisingly, they have nearly doubled every 48 hours! My hgc's have been so far
dpo 14 - 93
dpo 22 - 249 (eight days later)
dpo 28 - 1830 (six days later)

I was told after first one that my hcg-level is fine, minimum was 50, so I had almost doubled.

After second one I was told that I have very little hope and that I should prepare myself for miscarriage. I found information from internet and it seems that 15% have slowly rising betas though everything's ok (but unfortunately it also seems that not all of that 15% carrying on their pregnancies after first trimester but ending up having miscarriages before 12th pregnancy week anyway..)

And after the third one I was told that my chances are 50/50 (to viable / unviable pregnancy). I know these levels can also mean ectopic pregnancy and that makes me so worried. My left ovary isn't working anymore (no one knows why, maybe because of my endometriosis) and I'm so afraid I'm gonna loose the other one as well.. During the last days I've had both "miscarriages symptoms" (once little amount of brown discharge, some menstrual kind of pain in my lower back) and pregnancy symptoms (sore breasts, nauseousness). I'm having my ultrasound tomorrow and I'm so frightened…. I'm hoping so so much that everything's turns out fine!
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Re: very slowly rising hcg - waiting to miscarry?

Postby Kay » Tue Apr 29, 2014 11:19 am

Praying for you and praying they find that gestational sac! (((hugs)))
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Re: very slowly rising hcg - waiting to miscarry?

Postby Jennie79 » Wed Apr 30, 2014 5:40 am

Thank you for your prayers <3

I have good news: doctor saw today an embryo in my womb (so it's not an ectopic pregnancy!) plus, she also saw a HEARTBEAT E> I can't believe this is true! Embryo was size of 6+1 and my pregnancy weeks are now 6+2, but doctor said it's fine, the difference can be around four days at this point. I'm very very careful after all this, very "weak" start of pregnancy, but I'm also SO THANKFUL and SO HAPPY <3 All I can do right now, is to wait and see what happens. And hope everything goes well :)
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Re: very slowly rising hcg - waiting to miscarry?

Postby Kay » Wed Apr 30, 2014 6:03 am

That is just amazing news! Congratulations! My first thought with the very slow rise in hCG initially is the vanishing twin syndrome. I know it is not quite as likely but since it's possible...

I'm moving you to the misdiagnosed stories. Please, keep us updated. Praying that heartbeat stays strong and healthy!
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Re: very slowly rising hcg - HEARTBEAT FOUND!

Postby Jennie79 » Wed Apr 30, 2014 4:59 pm

Thank you <3

I was hoping the 'vanishing twin' as well, but unfortunately doctor didn't see anything like that in the u/s. And I think she would have seen SOMETHING, since she said the "view" in the u/s was exceptionally clear, not usually they see so good picture on 6+ week. That would have explained the slow rise hCg between weeks 4 and 5 (and also the spotting those days plus the fact that I had very strong pregnancy symptoms on very early days). Now I didn't get any explanation to low rising hCg and must say, that it really bothers me. I'm so afraid the reason for that is in the embryo's poor development - although embryo has grown normally, there are problems that can come out later. I have tried to find answers and hope from the internet, but unfortunately - apart from this MM-site - the results are sad. Tens and tens of same kind stories than mine (slow rising hCg, then doubling, then heartbeat at u/s) and STILL they ended up having miscarriage during first trimester. And only couple of successful stories, some of them known caused by vanishing twin. This keeps me worried still (though the doctor was sure everything's fine now). I hate this waiting, it's driving me mad already. Like the midwife said the other day, I have so traumatic background with my previous pregnancies (except the one I had my son) that I should have "perfect pregnancy" to keep me calm, but unfortunately life doesn't go that way.. (I have pregnancy losses on week 5, 12 and 23 and now I'm scared I'm going to have fourth one..)

I'll update this later.
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Re: very slowly rising hcg - HEARTBEAT FOUND!

Postby Jennie79 » Wed May 07, 2014 8:57 am

Hi again,

Updating to my situation: I have had on/off spotting and last weekend I started to have quite strong low back pain and menstrual-like-pain in my low stomach. I was sure I'm having miscarriage (and mentally I have waited it since one doctor told me so two weeks ago..) Yesterday I went to another doctor for an ultrasound. There was still living embryo, exactly right sized (actually measured 7+2 though yesterday was only 7+1) + strong heartbeat E> My pains were explained by my uterus, which is leaning to my back (I don't know right terms to this in English) and some other issues with the uterus, which are caused by my endometriosis. I still didn't get any explanation for the spotting, but the doctor said, it is very common and I shouldn't worry about it, since it is not actual bleeding (small amounts of brown discharge somedays, other days nothing). The doctor I met yesterday was very experienced specialist, in fact he was around 70-years-old professor. He was amazed by my hCg-levels and he actually thought that the second number could have been mistake of the lab (very unusual but possible). He told me everything looked fine in u/s, but he didn't want to "predict" anything since the situation is so strange (very slowly rising hCgs + normal ultrasound twice). Now I'm on pregnancy week 7+2 and I'm having my next ultrasound 9+2.

I also found out that the doctor who did my previous ultrasound at 6+2 weeks was not the same doctor who predicted a miscarriage over the phone because of my slowly rising hCg's. That's why the ultrasound-doctor was so optimistic, she didn't really know about my levels, she probably read them for the first time in that meeting.. I asked that "hCg-doctor" to call me and tell me her opinion about my situation. She'll probably call me tomorrow.

I have read every information I could find about slow rising hCg's. There are depressing and encouraging information. I think I would like to share some of the ENCOURAGING stuff here, as here are others thinking about same things:

I also contacted one of the most appreciated doctor of this field in my country. He's not doing just embryo/fetus diagnostics, he's also doing fetus surgeons in very severe cases. And to my very big surprise, he actually answered to my e-mail! And he told me that [b][b]hCg is very "lousy" argument to define quality of pregnancy. It is good only in two things: when it doubles in early pregnancy, it tells that placenta tissue is forming and, if it's falling, it tells about miscarriage. Also risk to ectopic pregnancy is bigger when the level is more than 2500 iu and there's no signs of pregnancy in the uterus. Other than that, there is not any clinical value to follow hCg-levels . [/b][/b]According to this, I may have placenta problems, which makes me worried BUT he also told me, that having a heartbeat on pregnancy week 6 is the one, that matters and comforts and asked me not to worry so much. He estimated my miscarriage risk to be around 8-9 % at this point (I think in normal situation after good ultrasound on pregnancy week 6 it is only 2%).

Another thing I found comforting, was looking at my numbers rising altogether: from 93 to 1830 in two weeks. I know 1830 is quite low for 6+0 pregnancy week, but without the middle number (249) my line is very firmly rising. Actually, doubling time in two weeks is 78 hours, and from American Pregnancy -site I found out that normal doubling is actually 72 hours, NOT 24 or 48 hours! And thinking about that, my levels are not looking so bad anymore. (http://americanpregnancy.org/duringpreg ... evels.html)

From that same site I also found out that "Caution must be used in making too much of hCG numbers. A normal pregnancy may have low hCG levels and result in a perfectly healthy baby. The results from an ultrasound after 5 - 6 weeks gestation are much more accurate than using hCG numbers."

I know I'm looking for ANY comforting information at this point, but who wouldn't? Like I told, after I was told I will miscarry, I have mentally "waited" miscarriage ever since. Which has made these last two weeks extremely hard. Here's why I'm trying find reassurance and comfort as much I can. Ultrasounds have been calming and comforting, but I'm not "out of the woods" yet. There are still at least three more weeks to go before I can let myself believe that this can actually end up well.. All I can do right now is to wait.

I'll update my situation later.
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby Kay » Wed May 07, 2014 12:15 pm

You have shared some great information, thank you! Most doctors won't even do another hCG check after the gestational sac is found. So many women have numbers that do not double in 48 hours and they are not supposed to! Frustrates me when doctors worry women over hCG numbers that way.

Hang in there. Having bled a lot during my first pregnancy, I understand the worry. Praying for you and this little one. Thanks for the update!
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby Jennie79 » Mon Jun 02, 2014 9:02 am

Updating my situation again:

I'm currently on pregnancy week 11+0 and waiting for my 12th week ultrasound, that is on Wednesday. But a lot has happened since I updated my situation last time. I had ultrasound check on pregnancy week 9+2 and baby (now he/she actually looked like a baby/fetus) had grown exactly right sized and had a strong heartbeat <3 But, the doctor also found an haematoma (I don't know is it spelled right) from my uterus. It is some sort of bruise and it was partly under the placenta (not so good news). Doctor thought that the placenta has caused the on/off spotting during first four weeks of pregnancy (weeks 4-8). After that, the spotting has stopped, but there was still some "dried" blood in the uterus. All I can do now is to wait and hope everything goes well and the blood will absorb to my uterus and the haematoma disappears. Other options are far more scary, if the haematoma grows and then bleeds off, it could pull off the placenta as well and that would obviously mean miscarriage. The situation is been monitored every two weeks until the haematoma has disappeared (IF the pregnancy continues otherwise).

Now I'm having another theory of my very slowly rising hcg - maybe it was the placenta bleeding (spotting) that cause it? Because, obviously the placenta tissue wasn't forming well during those early weeks when I had the spotting most. And the hcg is placenta hormone and it was exactly same time as it rised very slowly. Doctor didn't said anything about this, it's just my own thoughts.. All I can do now is to hope that the placenta is formed well enough and it will keep on working as long as it should...

So I haven't been in u/s check nearly two weeks and I'm so scared of Wednesday. Although, I have had very much pregnancy symptoms during last weeks: lots of nausea and tiredness and sore breasts. Specially the strong nausea keeps me hopeful, I think it has something to do with rising hcg levels as well..?

So, here's my situation now. I'll be back after Wednesday.

Jennie
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby clairedelune » Thu Jun 05, 2014 5:44 pm

How did the ultrasound go, Jennie79?
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby Jennie79 » Fri Jun 13, 2014 4:19 pm

I'm sorry it took so long to answer. But I have good news: against all odds, everything was FINE <3 I went to u/s on pregnancy week 11+2 and the baby was sized 11+5, so he/she had grown very well. Heartbeat was strong and the baby moved his hands and turned around many times. I can't describe how I felt <3 Plus, the haematoma had disappeared! It had absorbed just in two weeks. Now I don't have any extra ultrasound checks if everything goes well otherwise - according to my doctor, this pregnancy is considered to be normal now on.

Now I'm on pregnancy week 12+4 (or 13+0). I can't believe I actually made it through the first trimester even if the chances were so small with so slowly rising hcg in the beginning. It must have been the slowest rising hcg's ever...? All I can do now is to hope & pray that everything keeps on going well and we'll have our baby on December E>

THANK YOU VERY MUCH ON YOUR SUPPORT <3 I'll come back to update this later:)
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby Jennie79 » Fri Jun 13, 2014 4:39 pm

Btw, I also found this, very comforting and calming text (doctor's answer) on internet:

"If HCG monitoring is indicated, try not to read too much into the absolute numbers and rates of increase of the HCG levels. Trust your doctor's knowledge and experience to tell you if and when to repeat the tests, when and how to react to the numbers, and when to have an ultrasound. I can't tell you how many patients I've had who convinced themselves that their pregnancy was doomed based on inappropriate interpretation of HCG levels, only to discover that everything is fine when an appropriately timed ultrasound is performed.

Once an intrauterine pregnancy is visible on ultrasound, do not put any faith in HCG measurements. Frequently pregnancies and their HCG levels don't fit the mold, and the numbers don't increase the way they "ought" to. Rely on time, and predictable ultrasound changes to determine pregnancy viability."


I wish someone (doctor) would have told me this in the early weeks (instead of saying "you are probably miscarrying"...) It would have given me so much hope and relieved so much stress. But obviously many doctors are very cautious in their words and rather say negative "predictions" than positive.. I just wanted to say to others in similar situation, that THERE'S ALWAYS HOPE - if I had it with my very, very slowly rising hcg, other ones have it for sure!

My situation was, probably, that there had been some problems with the placenta implanting the uterus and that caused the spotting, the poor HCG rising and the haematoma. I was very lucky that the situation turned out well: the placenta tissue kept on forming, spotting stopped and placenta hormone (HCG) started to rise again. Now it seems that placenta is working well as the baby is growing well and there's no bleeding or haematoma (bruise) anymore. So I believe placenta problems can be one thing to cause and explain slowly rising HCG levels and obviously they can "fix" themselves sometimes!
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby jeni284 » Thu Jun 26, 2014 10:50 am

Thank you thank you thank YOU So much for this POST!!! My doc said he isn't calling mine a miscarriage yet. But if I start bleeding call right away. I am 7wk 1 day today and I had first blood draw at 6 wks. 2046 hcg I went in yesterday for u/s he found a gestational sac and yolk sac but nothing else. A little concerned we drew blood again got results today 7900. The nurse called with those and seemed concerned. She explained the whole if you start bleeding thing and told me my levels weren't no where near where they should be. Shes talking to him and seeing if theres anything I can do to avoid miscarriage. Which was before I read this post. I found the American womens association website thank you! It says doubling 48-72 hours. If I double 72 hours I'm not far off!! 8100 isn't far from 7900!! I have every hope I have done everything right this pregnancy and even started 81 mg asprin (I have clotting issues) I was so devastated and I really think I found the hope things can be okay! I can't thank you enough for this post!
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby zsasie » Tue Dec 16, 2014 3:47 pm

What a encouraging story! I hope you had a healthy rest of your pregnancy and had, or are about to have a healthy little baby!
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby Jennie79 » Tue Dec 30, 2014 6:41 pm

Sorry I haven't updated my situation here for a long time. I hope everything went well with Jeni and thanks to all of you who comment my story. I'm so lucky to tell that my story has a happy ending. I gave birth healthy, perfect baby girl on this December. I'm so thankful for this. I hope my story will give hope for others in same situation. Even with the VERY slowly rising hcg - there's always hope <3 I wish all the best for everyone here.
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Re: Very slowly rising hcg - HEARTBEAT FOUND!

Postby Kay » Tue Dec 30, 2014 10:20 pm

Congratulations!!!! That is so exciting! Thank you for keeping us all updated during your pregnancy. It really has helped so many women.

At some point (when I have the time), I hope to put together a little 'misdiagnosed' video for the site. If you are interested in including your little one's photo, just send it to me at misdiagnosedmiscarriage@gmail.com Not sure when it'll be done though because I have been putting it on the back burner for a year now :) Any photos included will just have screen names and not real names. Up to you.

Congratulations!!!
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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