Rbeki's Story - Bleeding and Misdiagnosed in ER

Have you had a misdiagosed miscarriage? Please share your stories here.

Rbeki's Story - Bleeding and Misdiagnosed in ER

Postby rbeki » Mon Jan 27, 2014 4:28 pm

I don't really know where to start as it has been 3 years on Wednesday now since my husband and I experienced a day we will never forget. I guess it has taken me time to deal with what happened but today looking up misdiagnosed miscarriages I came across this site and I thought 'I want to tell my story now, and give strength to others in similar situations'.

My husband and I had been trying for a family for nearly a year when we found out that there were problems for both of us. We were just starting to take our first steps to getting help when we found out I was pregnant. I was still bleeding lightly so I had an early scan at 6 weeks which showed a healthy sack. I continued to bleed and at about 10 weeks I was in hospital over night waiting for a scan. Fortunately all was ok but I was put on bed rest.

Then came that day, 29 January 2011. I had experienced some cramping which was very uncomfortable and bloating all night. That morning I felt the urge to go to the toilet so I rushed off thinking I will be back to cuddle up to my hubby and watch tv again in a minute, so no need to hold it in. However when I went to the toilet I noticed gushing bright red blood. Luckily we were with family who called for an ambulance and I was rushed to hospital. I didn't feel pain but the fear took over and I said I was in slight pain so I could be rushed quicker, I was praying over and over to save our child. At the hospital I was put behind a curtain and told to sit on a commode where I passed a very large clot. As there was no pain I tried to remain positive but something felt wrong passing what I did. Straight away the nurse in A&E moved me to a private room and proceeded to tell me I had passed 'the product'. That word alone an unkind and cold way to approach a mum loosing her first child. Family could hear me wail through the rooms, my husband was in shock. I blamed myself as I was handed details of a grieving counsellor and details on a 'funeral'. It was a Saturday and the nurse said they think there may be some 'things' left inside but they have no staff in on weekends to work the scanning equipment and after tiring up book an appointment I was told I would need to wait nearly a week to be scanned. I pleaded for the hospital to let my husband stay with me and they put me on a ward with elderly people with dementia symptoms. I spent the night listening to an old lady screaming while inside was silent. I told my husband I wasn't going to wait a week to know what went wrong and after 3 days of crying in bed not talking as we grieved, our parents paid for us to go privately. I remember thinking I was still a mum but also trying to listen to my husband try to reassure me that it wasn't my fault I miscarried. It was a Tuesday and I remember walking into the room telling the private dr I had lost my baby and the hospital said I needed a D&C but I refused any internal examinations until I was scanned. As he laid me down my husband sat on the sofa next to me holding my hand and within less than 30 seconds we heard our babies heartbeat and saw them forming healthily in my womb. We cried and cried and the family who first heard I was pregnant with sad news were suddenly being told the hospital had made a mistake.

We complained but the hospital tried to basically blame my hormonal state as me misunderstanding. Problem was the nurse told my family too. Yet they still wouldn't apologise like they should.

I moved hospital and was looked after amazingly. I continued to bleed to 20 weeks. I stayed on bed rest and our gorgeous daughter was born 16 August 2011. Her middle name is Milagro which means Miracle, and she is our miracle girl surviving what drs even thought was an impossible pregnancy

I know that pregnancies can end in miscarriage and that is one reason we haven't had more children, however I am also here to say that there is hope and believing in mothers instinct and having faith can prove to be a real miracle.
rbeki
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Re: Rbeki's Story - Bleeding and Misdiagnosed in ER

Postby Kay » Tue Feb 25, 2014 10:35 pm

Oh my goodness, so much of what you've written sounds like my first pregnancy! I can so relate to all you went through. I, too, bled throughout the second trimester and was told twice I was likely miscarrying. I wasn't.

Thank you for sharing your story. It will help a lot of women. Too many women end up misdiagnosed in the ER. ER doctors are wonderful but they can't be specialists in every field, plus they are overworked. Mistakes are very common.

Thank you!
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Re: Rbeki's Story - Bleeding and Misdiagnosed in ER

Postby Kay » Tue Feb 25, 2014 10:37 pm

By the way, I am working on a video for our site. If you'd like to include a baby photo of your little girl, you could send it to misdiagnosedmiscarriage@gmail.com I just want to get the word out there that a miscarriage diagnosis does not always mean a miscarriage and women should be 100% certain before ending their pregnancies. I'll have the video out in the next few months and will show it to the women who have included their little one's photos before I put it online.
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Kay
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Re: Rbeki's Story - Bleeding and Misdiagnosed in ER

Postby motsa » Sun Aug 10, 2014 2:36 am

Hello. I've been reading this blog for the past week to help me give me some hope and to understand what may be going on with me.

Here is my story in short. Found out I was pregnant after implantation bleeding. After first u/s dr guessed I was 4 weeks. I continued the next 4 weeks to have weekly transvaginal U/S and hcg tests. hcg showed numbers were going up, but not doubling. U/s showed two sacs but one dr said most likely would not be viable. last week dr did not see a yolk sac in either sac. They told me to be ready for miscarriage and wanted to schedule a D&C. After a horrible weekend of crying i decided against the D&C. I went through a MC in April so I knew what to expect so I just took time off of work. But that mc happened all in one day, had to go to ER from pain and blood.

After reading Rbeki's story, I want to know when you were bleeding, what was the color? were their clots? I started some bleeding 5 days ago, only when I wiped, there was a brown discharge. Today I have been bleeding but not soaking pads. Only notice it when I am in the bathroom. I just saw clots the size of a dime.

Your story is just giving me more hope but I want to be realistic. The clots are really worrying me and also now that i am seeing red continuous blood.

Thank you for replies.
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Re: Rbeki's Story - Bleeding and Misdiagnosed in ER

Postby rbeki » Tue Feb 10, 2015 5:23 pm

I sincerely apologise for not getting back to those women who messaged. I have, for some reason, only just seen these.

Firstly I really hope and pray that you brave ladies managed to have successful pregnancies.
It was 4 years ago that my horror unfolded and I still remember the day like it was yesterday. People tell me to get over it but each time 29th of January comes I go quiet I have a private cry and I thank God that my little girl stayed safe.

I still have not gone back to that hospital and in fact we moved house and jobs to try to start again. I unfortunately I have been very poorly since the birth of my daughter and despite trying for another it seems that my body is no longer my friend and it us unlikely to happen, especially as I am in and out if hospital as it is with gynae and bowel problems. I even saw a counsellor to try to cope better with things.

The reason I say this is despite all the bad things that I have endured, seeing our miracle daughter grow is a reminder that sometimes unfortunately hospitals make mistakes and it is mothers instinct that is the most powerful sense.

I bled bright red blood on and off in the first few weeks of my pregnancy. I was put on bed rest and I remember one morning really needing the toilet. When I got there, there was just pools of bright red blood and it was then my family called for an ambulance. While in hospital the nurse put me on a commode, closed the curtain from my husband and walked off. I remember trying to hold in something I felt trying to come out, then suddenly I lost a large blood pool which felt like nothing I had experienced before. Right away we were whisked into the secluded room and told I lost the product but couldn't be scanned only I needed a D&C. I refused and luckily I did as a few days later we saw our daughter happy and healthy on a private scan.

I however continued to spot and bleed brown blood until about 20 weeks and when my waters broke there was blood, I haemorrhaged but our little girl was born healthy and not effected by all the turmoil I had gone through.

My advice for anyone going through anything similar is to trust yourself and take plenty of rest until you get answers. I am in no doubt that staying in bed resting helped keep our daughter safe and sound.

I hope you all are well and that you have been blessed with your own miracles.
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