If You Have Been DEFINITELY MISDIAGNOSED...

Have you had a misdiagosed miscarriage? Please share your stories here.

If You Have Been DEFINITELY MISDIAGNOSED...

Postby Kay » Fri Feb 01, 2013 9:11 pm

If you have definitely been misdiagnosed, please, post your story in here. As time allows, I will move it into the forum.

The forum fills up too quickly with non-misdiagnosed stories and women just looking for help. We've had to lock it so that women can easily find the actual misdiagnosed stories.

If you have ABSOLUTELY been misdiagnosed and want to share your story, please, post here. You will help so many women.

If you have not been misdiagnosed...yet, please, take a look at one of our other forums and leave your post there. Posts in here may not be answered.

Possible Miscarriage ~ All Other Issues
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Re: If You Have Been DEFINITELY MISDIAGNOSED...

Postby Knut4ever » Thu Feb 09, 2017 6:34 pm

Last Friday, at 5w6d I went for an ultrasound (vaginal) to confirm pregnancy. I am sure of my date of conception as I conceived through IVF. They told me that it was a 4w3d pregnancy, with no embryo or vesicule to be seen. only an empty sac. Tiny sac: 1.3mm.
I came back home devastated: I am 42, this is my 3rd and last IVF. Spend the WE doing all the things you are not supposed to do when pregnant. And cried myself out.

On Tuesday, at 6w3d I went to confirm the diagnosis and see for the further steps to my ob-gyn. She told me that she was not ok with the diagnosis and that according to the us pictures I was a bit further than 4w3d. She proceeded to another vaginal us: there was an embryo, but too small, only 3,3mm. No heartbeat. She was telling me that it was definitely bad and that I was likely to loose the pregnancy, but that there was still a tiny hope. She put me on rest.

And this afternoon, at 6w5d I went back as requested and she found an heartbeat of 119 bpm. O gosh, I cried like a pussy. the embryo is now 7.8 mm. The ob-gyn says that it is still a bit late by it is catching over. I have to come back in a week but the odds are far better today than they were 2 days ago.

During those 2 days this site and all those stories helped me SO much. Thanks guys.
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Re: If You Have Been DEFINITELY MISDIAGNOSED...

Postby Mashael » Thu Feb 16, 2017 12:14 am

Thank for this chance to educate each other on our experiences.

This started when I had a light vaginal bleed one Sunday evening. We went to the ER just to be sure nothing dangerous was going on. The ER took blood tests and did a vaginal and abdominal ultrasound. My hcG was at 14,000 but they said they could not find a baby.

The doctor then came in and said "You've had a miscarriage." Not "possibly" but said it was definite.

His justification was that with such high hcG there should have been something "visible" on the ultrasound. I was immediately scheduled to see an OB and was told to prepare to take medication at that doc visit that would expel the fetal tissue and was sent home.

We were devastated. UNTIL... during the days off my employer gave me considering the situation that I looked up information on hcG levels and vaginal bleeds. I located a research article that stated in their study 80% of women who had vaginal bleeding did NOT have a miscarriage.
That article was titled: "Vaginal Bleeding in Very Early Pregnancy" by E.W. Harville. It is available to read online.

I also read other women's stories about misdiagnosed miscarriages and IMMEDIATELY called a friend of mine to get a recommendation for a new doctor.

At that doctor's office, they calmed my fears and took a beta hcG. That result showed my hcg level was still rising !!! and they called me to come in immediately the next day to have a full exam.

After that exam we found that the pregnancy was healthy
AND NOT ONLY THAT... BUT WE ARE HAVING TWINS !!!

That was the reason for my very high hcG level and the reason they couldn't find the baby's 2 weeks before at the ER was because apparently my uterus is tiled AND is higher than normal in my abdomen.

BOTTOM LINE LADIES: You know your body. Trust your instincts and get a second and even third opinion if you must.

A light vaginal bleed is not enough to tell you you've had a miscarriage. You have to get at least 2 hcg levels taken and at least 3 days apart. Also, you need to have at least 2 ultrasounds to confirm presence of a fetus. And also, it helps to ask your doctor if your uterus is tilted or not.

Our bodies can be just as unique as our very different personalities.

With Love,

Mashael
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