My story

Have you had a misdiagosed miscarriage? Please share your stories here.

My story

Postby sadie79 » Fri Mar 20, 2009 9:29 pm

We first found out that we were pregnant in August. During my first visit to the dr. I had an ultrasound. Based on the ultrasound and subsequent lab work, my dr. said that there was no baby, only tissue. When the tissue never passed, my doctor prescribed cytotec. After taking the cytotec and bleeding I went for more lab work. The lab work indicated that tissue was still there. I went in for a d & c. During the d & c, they found a real live heart beating baby. This occurred at 12 weeks.

We were thrilled. Unfortunately we were a little premature in our excitement. I began leaking amniotic fluid after the d&c. While it was never confirmed, my perinatalogist implied that the sac was most likely punctured during the d&c. Within a matter of weeks, we went from low fluid to no fluid. At 15 weeks both my ob/gyn and the specialist gave the pregnancy 3-4 weeks before the baby would die because it would be too overwhelmed. We were also told that without fluid, our child's lungs would not develop. We were advised to terminate because I was at incredible risk of infection. This was not something that I could do.

I began seeing my doctor weekly for ultrasounds and to check if there was still a heart beat. Each week we were surprised. The baby kept living and growing. We were living in a nightmare.

At 23 weeks, I began bleeding. The doctors could not figure out what why it was happening. After a night in the hosptial and several days of bed rest, I was released back to normal activity. The bleeding continued.

I was living like this for weeks. Sometimes the bleeding was so heavy, I thought I would bleed to death. I was also incredibly exhausted. I couldn't walk across the room without having to rest.

We were finally scheduled for an MRI to see the lung development of our baby. The MRI showed that the lungs were very underdeveloped. There was nothing the doctors could do and there was nothing that waiting would help. We scheduled a c-section for that afternoon. I was 29 weeks pregnant.

Doctors prepared us for what would happen. They explained that the baby would probably not try to breath and that he would most likely be blue. They would wrap him and hand him to us to die.

The c-section was the most painful experience of my life. I had a previous c/s and it was great. This was awful. The spinal didn't take well and I felt everything. I thought I would die. They offered to knock me out, but I wasn't going to miss the few precious minutes I would have with my baby. During the c/s the doctor found that the placenta had almost completely abrupted. One of the causes of abruption is premature rupture of the membranes. The doctor said that if we would have waited for the c/s even a day that the baby would have definitely died and I most likely would have bled out before getting to the hosptial in time. The mysterious bleeding was now explained.

When my son was born, he surprised everyone. He came out wailing. The doctors felt it would be best to put him on a ventalator and transfer him to another hospital. I was able to see him for a few minutes before they took him away.

My husband stayed with the baby. He called early the next morning to tell me the doctors thought it would be best to take him off the ventalator. His health was rapidly declining.

I was transferred to the hosptial just as he was being taken off the machines. My husband, his parents and my parents were able to spend the next few hours with the baby. This has truly been horrible for my family. My son died 4 weeks ago today.

I just want to encourage everyone to always ask for a second opinion. No matter how much trust we place in our doctors, no one is perfect. Anyone could make a mistake. I keep thinking that if my first apt. was a week later or if I had chosen a different doctor I would still have my baby. It never hurts to be overly cautious. I don't want anyone to ever have to experience what we did.
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Postby nenasangel » Fri Mar 20, 2009 10:48 pm

Thank You for sharing your story. I can't imagine how painful this must have been for you and your family. You and your family are in my prayers. :H
Hoping & Praying
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Postby shelley75 » Sat Mar 21, 2009 9:23 am

I am so sorry....what a horrible ordeal....there are no words just a big cyber hug :(O

E> shelley
me~Shelley-34 DH~ Ashley 30
Madison Paige born 9/12/00
m/c 10/02
Zoe Annelise 02/27/07
Kara Jacqueline 04/18/09
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Postby Kay » Sat Mar 21, 2009 4:46 pm

Oh Sadie, your story leaves me in tears. You have an important story though and what you say is true, if that first doctor had just had patience...

My heart goes out to you. I know this has to be so difficult to even speak about but thank you. From the bottom of my heart, thank you for sharing your story.

To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this

This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Im so sorry for you loss.

Postby Havefaith916 » Wed Mar 25, 2009 2:14 pm

God bless u and your family..
Im so sorry for your loss.

Iam so going thru this very moment one of the hardest times in my life and your story has made me see haw wrong dr can be. And to make sure to always get that second opinion. I will and wait they tell me exactly that no baby just a empty sac but my heart tells me different.
I pray all will b ok
thank you for sharing your story
Hoping for a Miracle
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