Crystal's Story - High hCG Levels, Suspected Ectopic - MISDIAGNOSED

Have you had a misdiagosed miscarriage? Please share your stories here.

Crystal's Story - High hCG Levels, Suspected Ectopic - MISDIAGNOSED

Postby Kay » Sat Feb 03, 2018 5:50 pm

Crystal sent her story to me and gave me permission to share
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"Last week I found myself reading your posts and comments searching for hope and inspiration. I was facing my third miscarriage in 3 years. The first was ectopic and resulted in my tube being removed. In that pregnancy, my hcg was doubling normally and they held out hope because they thought they saw a sac measuring small but it turns out it was a pseudo-sac-common with ectopic pregnancies.

The second loss happened just months ago. Everything seemed fine, again they saw a sac, but I was early only 5 weeks. Went back a week later and they saw nothing. They decided to get labs which showed HCG dropped. A few days later I started to bleed. I was treated with methotrexate just in case it was in my tubes and to speed along the process. The methotrexate was terrible.

Four cycles later and I am pregnant again. I started having right sided pain and suspected it was another tubal. For fear of rupturing I went to the ER and was told my HCG was 27,000 normal for 6 weeks but they only saw an empty sac measuring 5 weeks. I left feeling uneasy since they thought they had seen a sac before. I followed up with my OB/GYN 5 days later to find my HCG doubled to 50,000. They did a transvaginal ultrasound and found nothing.

My heart sank. I prepared my husband for another surgery and figured I'd lose my remaining tube. It felt like punishment. The doctor referred me to the high-risk perinatal specialist next door. To my surprise, they found a healthy fetus in the uterus with a heartbeat of 164 bpm measuring exactly 8 weeks! I can't believe it! I feel like the exception to the rule and am so grateful for the second opinion.

What if that doctor wanted to do surgery right away or treat me with methotrexate again? It's frightening to think how many people this might happen too! I feel compelled to share my experience because it can happen to anyone. This experience is a miracle. Did I mention my husband was tested and told he would not conceive children, and with only one tube I've heard the chances of a viable pregnancy go down, but so far we are beating the odds and can only hope and pray that this little miracle continues to grow.

Thank you for your site and all the positive stories and comments. "
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To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
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Kay
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Re: Crystal's Story - High hCG Levels, Suspected Ectopic - MISDIAGNOSED

Postby Kay » Sat Feb 03, 2018 5:51 pm

Crystal, thank you so much for sharing your story. Ectopic pregnancies are scary and often have to be treated right away but we have seen our share of misdiagnosed ectopic pregnancies here as well.

I hope the rest of your pregnancy is uneventful! (((hugs))) and congratulations!!!
-------------------------------
To read my own Misdiagnosed Miscarriage stories:
my blighted ovum scare
Told I was miscarrying at 12 weeks

Blogging on Misdiagnosed Miscarriages
If you are being diagnosed with a blighted ovum after IVF, please take a look at this article I put together: Misdiagnosed Miscarriage After IVF
and why I just believe a blighted ovum should NOT be diagnosed before nine weeks at the earliest and the UK's new guidelines support this


This post is for informational purposes only. This information is not intended to replace information given by your physician but rather intended to supplement that information.
User avatar
Kay
Moderator
Moderator
 
Posts: 7787
Joined: Sat Feb 19, 2005 4:38 pm

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